So many of us are living smaller, harder, more invisible lives.
According to the CDC, chronic illness affects more than half of all American adults, and more than a quarter live with two or more chronic conditions. While that is the majority of us, we can feel so alone, so isolated, and separate because of our symptoms, the impacts of our illness(es), and because of our limitations. You are not your illness(es). And, you are not alone.
Here are some resources that might speak to you.
Some blogs & videos which focus on chronic illness and might be timely for you
All of my content is about chronic illness, but if you wonder whether my style, perspective, and content speak to your needs and heart, here are a few pieces to start with that will give you a sense of what I have to offer.
Hope is a Four-Letter Word
For me, hope can be a double-edged sword. It can give me a reason to look ahead and try to carry through, but then when my hopes aren’t met or are dashed, what am I left with? Hopelessness? Pema Chodron, American Buddhist nun suggests that we “abandon all hope.” What would that mean? Live in despair? Here's another suggestion: agency. When I have self-determination…Watch Now
Trying to Manage Additional Crises AND Chronic Illness
This year has started out pretty rough, after tearing tendons and ligaments in a spectacular ankle turn, my mother in law was hospitalized for eleven days of January (9 of that in the ICU), shortly after, my wife totaled our vehicle. We are so thankful that no one was injured – that’s not nothing! Additionally, she runs her own business and is having an issue with the primary place…Keep Reading
Remembering I'm Enough
These illnesses have a way of stripping us bare. I've recently been overwhelmed with additional, temporary illnesses, on top of all the things I'm ordinarily coping with – the “extra” has been more than I could handle. My tendency to turn inward at these times, instead of reaching out, does not serve me. At times like these I am prone to forget the most basic truths of my circumstance…Watch Now
Learning to Love this Imperfect (Illness-riddled) Body
In the years that I’ve been sick. My illnesses have multiplied and compounded. What began as a diagnosis of mono, eventually became Myalgic Encephalomyelitis and Fibromyalgia. Later I developed a rapidly advancing muscle wasting disease called Polymyositis and the adventure of having an auto-immune cluster of rare diseases began in earnest. I lost 40 pounds of muscle weight in less than three months. Along with it, I lost...Keep Reading
%!#[email protected] Control?
We all want control. How does chronic illness impact that? Loss of control is a hallmark of chronic illness. What does my hair have to do with chronic illness and control? When there is so little that I can control, when I am overwhelmed by so many things happening in my life and in the world around me. However, today: I have a clean…Watch Now
Managing the Isolation of Chronic Illness
Prior to getting sick, I was an extrovert’s extrovert. I was a people person who got my needs met by being around people. When my energy was flagging, I was typically recharged by (you guessed it) being around people. I have basically zero amount of social anxiety. In fact, if there is such a thing as solitude anxiety, I have that. As a child, I shared a…Keep Reading