All Episodes
Episodes
Episode 159: How do You Manage Life With Lung Disease? Life with Oxygen
Lung disease makes you appreciate what requires oxygen.
From laughing to crying, it all requires a lot of oxygen.
Living with supplemental oxygen, I learned that not all cannulas are created equal.
Having increased...
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Episode 158: How do You Manage Life With Lung Disease? Breathing Exercises
How do I maintain lung capacity?
Today I walk you through a breathing exercise.
Sometimes called "square breathing" we try this practice together.
How do we work our diaphragm and fill the whole lung?
What do you do...
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Episode 157: How do You Manage Life With Lung Disease? Scary Meditation
Take a deep breath and appreciate your lungs.
It is easy to take autonomic responses for granted until they go offline.
Loosing 70% of my lung function in less than 6 months.
The experience of being unable to catch my...
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Episode 156: How do You Manage Life With Lung Disease?
Are you one of the millions impacted by lung disease?
This week we'll be talking about how to live better with lung disease.
Today I'm sharing an interesting detail about one way that lung disease, over time, changes...
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Episode 155: How do You Advocate With Chronic Illness? Expertise
How must we become specialists in ourselves?
Why is expertise necessary for advocacy?
No one will speak up on my behalf, the way I'll speak up on my behalf.
Learning about my illnesses, medications, my body are...
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Episode 154: How do You Advocate With Chronic Illness? Communication
Remember the game telephone?
My ability to self-advocate is only ever as good as my ability to communicate.
How can I translate my self-awareness?
What are the descriptors of my experience?
How can I ensure that the...
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Episode 153: How do You Advocate With Chronic Illness? Self-Awareness
What's the next part of self-advocacy?
How do you build self knowledge?
How do you keep track of what you know about yourself?
No one but you is having this experience.
People can't read your mind or know what it's...
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Episode 152: How do You Advocate with Chronic Illness? Self-worth
What is your orientation towards self-advocacy?
What are the necessary skills for self-advocacy?
What is it about being "other" that requires being an educator?
If you don't believe you're worth it, you won't speak up...
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Episode 151: What About Race and Chronic Illness?
Did your illness come on during a time of greater stress?
Stress always exacerbates chronic illness.
People of color are 1.5-2 times more likely to suffer a chronic illness than those of us who are white.
Why is that...
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Episode 150: What About Secondary Injuries? Extreme Letter Writing
Here's the story of how I sprained my ankle.
Extreme thank you note writing - it's not a thing.
How could this have been prevented?
How could being more in touch with my own experience have led to a different...
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Episode 149: What About Secondary Injuries? Impact on Others
How does my being worse off make things harder on the person caring for me?
As an empath, I was more focused on how much more this would mean for my wife.
When independence is curtailed it always means more work for...
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Episode 148: What About Secondary Injuries? The Impacts
What do you do when you injure yourself on top of being ill?
I've torn tendons and ligaments in my ankle.
When mobility is already restricted, any further restrictions cause a lot of additional burden.
The...
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