The ADA, Thirty Years of Impact Jul 21, 2020

The history of institutionalization, marginalization, and oppression of individuals with mental and physical disabilities are as old as recorded history.  The fear, shame, and lack of understanding that have accompanied many disabilities has...

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White Supremacy and Chronic Illness Jun 09, 2020

I’m the only white kid in my family. Understand, me saying that does not give me some kind of get-out-of-racism-free card, just a different lens on growing up white than the one you may have had. Being the youngest in a family with two brown...

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What's It Like to get Infusing Meds? May 26, 2020

For five years now I’ve been getting infusions to keep my body from fighting itself.  Infusing meds are a big part of modern rheumatology.  Thanks to the large population of folks with rheumatoid arthritis, there are now a growing...

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What is Myositis? May 12, 2020

Myositis is a type of inflammatory myopathies that are most commonly thought to impact the muscles (which they do) but they can also affect the heart, lungs, GI tract, and be associated with the development of cancer.  Myositis is considered...

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When the Story Gets Hard… Apr 28, 2020

A mentor of mine says that “when the story gets hard, the story gets good.”  Mind you, when my story is in the midst of a hard swing, is likely the last moment I want to be told that things are “getting good;” and yet,...

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How to Shelter in Place Apr 14, 2020

President Kennedy was said to have been quoting a Chinese curse when he said, “may you live in interesting times.”  Well, these times are nothing if not interesting.  A global pandemic during a time of unprecedented global...

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