How did You Get Diagnosed with Chronic Fatigue Syndrome?

Sep 10, 2019

Chronic fatigue, it sounds like something we’re all suffering from, right?  It seems like everyone is functioning on too little sleep, getting by on fumes, hitting the weekend too tired, stressed, and worn out.  Fatigue seems to be an epidemic.  And yet, when I talk about chronic fatigue syndrome, I’m talking about a whole different animal.  It’s hard to clarify for those who haven’t experienced it the difference between the fatigue that most adults...

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How do You Manage Your Food Needs and Chronic Illness?

Sep 04, 2019

I’ve mentioned on my YouTube channel that I feel best when I am mostly eating whole foods – fruits and vegetables, avoiding grains, starches, legumes/beans, and processed foods.   I am not impeccable in my eating.  There are times I have been – from eating squeaky clean and carefully monitoring exactly what and how much of what ingredient went in my system.  That is how I know what seems to work best for my system; What things make me feel worse and what...

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How do You Manage Brain Fog?

Aug 27, 2019

Brain fog, the vernacular for the dense cloud that muddies our thinking.  It seems to go along with chronic illness like summer follows spring.  I notice it settling in as I grow more tired or as my pain ramps up.  But I can also just wake up and find it there, lingering like a cloud does at the top of a mountain; hovering and muddling my attempts at recall, quick thinking, memory, language, attention, anything that requires focus.  It seems like so many of my receptors...

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How do You Manage the Guilt of Chronic Illness?

Aug 20, 2019

As I discussed in my last post, “Do you have a lot of guilt with chronic illness?” guilt and chronic illness are good friends.  They circle one another and are familiar traveling companions.  If you experience chronic illness, you likely know your way around some guilt.  Guilt about not getting things done, guilt about not showing up in the ways you’d like to, guilt over who you once were, who you’d like to be, etc., etc..  Guilt, like so many of...

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Do You Have a Lot of Guilt with Chronic Illness?

Aug 13, 2019

Yes.

This could be the shortest blog post ever.  I could just leave it at that.  Yes, I have a lot of guilt with chronic illness.  There is guilt on every front.  I’m not the kind of wife, auntie, daughter, sister, friend, niece, employee, neighbor, activist, advocate, community-member, or dog-mama I wish I could be.  This isn’t the path I was on, isn’t the life I imagined, isn’t the future I pictured.  I can load up a guilt-weapon and...

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What are the Gifts of Chronic Illness?

Aug 06, 2019

What a strange and amazing question that might be to some.  What’s more amazing is how many answers I have to that question!  There have been so many, and I don’t think I’m alone in feeling this way.  The crazy-beauty of tremendous hardship is that as life deals us difficult blows it simultaneously hands us these radical blessings.  Yes, I must avail myself to them and be willing to clear the debris from my heart in order to see them, but there they are...

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What Helps You Manage Chronic Pain?

Jul 30, 2019

Greetings my dears!  This week we’re digging in to one of the toughest and most frequently asked questions about living with chronic conditions – how to navigate chronic pain.  So tough, so entrenched, so much of an impact on every part of life and one’s ability to function, chronic pain is a many-faceted problem with no easy answers.  For me, my roots of chronic pain are fibromyalgia, chronic fatigue syndrome (which causes flu-like pain), my muscle wasting...

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How do People Deal with Having a Chronic Illness?

Jul 23, 2019

Hello lovelies!  Thanks for joining me here for your moment for chronic wellness.  I’m honored by your time and attention.  Today’s question – how do people deal with having a chronic illness?  Well, you know my initial hit to this one, don’t you?  Read my lips or say it with me: all. the. ways.  That’s how people do it.  All the ways and any way they can.  There is right way and no wrong way to do it, there is just making...

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What are Your Tips for Managing Doctors’ Visits with Chronic Illness?

Jul 16, 2019

Greetings dear ones, today’s moment for chronic wellness we’re talking about how to get the most out of your doctor’s appointment.  Navigating the world of chronic illness is like traveling to a foreign country, not speaking the language and not knowing the customs (while being too worn out to actually enjoy the experience of travel).  It’s overwhelming, overstimulating, and like being dropped down in a strange place without a map.  Self-preservation...

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How do you Find Fulfillment with Chronic Illness?

Jul 09, 2019

Today’s topic for your moment for chronic wellness – it’s a good one: how do you find fulfillment with chronic illness?  Whew!  Well, of course, some days you don’t.  Some days you’re fully immersed in the slog of it all and can barely pull your head up to see that there is a horizon, much less, find a way to something as lofty as fulfillment.  As with all fleeting things, fulfillment is temporary – but so worth noticing when it’s...

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