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Episodes
Episode 231: The Adventures Of SCIg Part 1
What happened when I failed IVIg?
My doctor wanted me to try SCIg.
Using a giant syringe with a craning pump at home, I was trained to administer SCIg to myself at home.
Each of the five lengths of tubing I had to...
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Episode 230: Infusing Meds By Port
chronic illness and quality of life,chronic illness and isolation,chronic illness and depression,chronic illness and self-worth,chronic illness and lack of control,chronic illness and grief,chronic illness and...
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Episode 229: IVIg Infusions
Have you heard of IVIg?
It is a blood/plasma product administered by infusion.
I was administered IVIg by the pulmonologist who was overseeing my care as I was working to get on the lung transplant list and waiting to...
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Epidsode 228: Meds For Autoimmune Disease
How can chemotherapy agents help halt the advance of autoimmune disease?
Some examples: methotrexate, and Rituximab
In the case of Rituxan, the agent keeps the body's B cells from maturing.
This reduces how I fight...
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Episode 226: Demystifying Autoimmune Disease
Autoimmune disease - what is it?
Where in the body does it happen?
My cluster of autoimmune diseases, called antisynthetase syndrome, attacks my skeletal (or smooth) muscles, my eyes, hands, joints, and my lungs.
What...
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Episode 227: Diagnosed With An Autoimmune Disease -- Now What!
Getting an autoimmune diagnosis can take 8-10 years.
Now you have a name. You know you are not alone. Now you are looking for your solutions.
And, when your body is attacking itself. It is not a simple thing to...
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Episode 225: New Life
What is waiting to be born in you?
Where is that edge between fear and excitement?
You have superpowers inside of you. There is no one who has walked the planet before with your exact combination of skills and...
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Episode 224: Bend But Not Break
How can the process of jewelry making be a a metaphor for surviving hardship?
What about resilience is like hammering wire?
What can we do to keep from becoming brittle?
Hardship can pull us into a stronger, improved...
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Episode 223: Cycles Of Life
How does disaster or chaos allow us to be born anew?
Chronic illness has given me that gift.
What precedes rebirth?
Death. What am I ready to let go of?
Is it time to stop saying "yes," and then resenting it? Do I...
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Episode 222: Rebirth
How do our lives mirror the cycles of nature?
We've just had a new moon, Easter, and spring is underway. I'm thinking about renewal.
While most all of us were not on the planet for the last Pandemic, many things on...
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Episode 221: When The Story Get's Hard
When the story gets hard, that's when the story gets good.
Who wants to hear that when things are hard?!
Can you be in this time of difficulty and see the future possibilities?
The phoenix only rises from ashes.
We...
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Episode 220: Shelter In Place - Love Light
I am feeling fear, sadness, and anger -- and those are just my emotions.
Bodily I am in a bad state. I am in a flare, if not a relapse.
However, what I want to talk about is joy.
It is said that "perfect love casts...
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