Facing Fibromyalgia May 11, 2022

Fibromyalgia – misdiagnosed, misunderstood, often dismissed, fibromyalgia.  Coming out of a long bout of mono, I wasn’t getting better.  Actually, I was getting worse.  However, the infectious disease specialist proved...

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Last Mask Standing (Rituxan and Vaccines) Mar 22, 2022

I don’t know anyone who isn’t suffering from some form of pandemic fatigue. That’s just the reality. It would be nice to see one another’s faces, gather in large groups, attend concerts, travel like we used to (without...

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The Cost of My Needs Sep 28, 2021

Near the end of her life my mother needed IV nutrition.  She lived as an ostomate for most of her life and scleroderma (a skin-hardening disease) contributed to her being unable to absorb nutrients in her last couple of years.  She was...

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Living the Biggest Life I Can With Chronic Illness Jun 08, 2021

A few weeks ago I had the tremendous pleasure of getting out of town for the weekend. My wife and I own a tiny motorhome and because she is able-bodied and willing to do so much of the (literal) heavy-lifting, hauling, and driving, that it...

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How to Receive in the Season of Giving Dec 08, 2020

We are officially now in what some refer to as “the season of giving;” giving thanks, giving gifts, giving of yourself, time, resources. It stands to reason that if there is giving, there must be receiving. As I think about what it...

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Navigating Solo Holidays for Maximum Joy Nov 24, 2020

Because of family traveling in from out of town and the fact that I am especially susceptible to this virus (immune compromised, immunosuppressed, and I have lung disease), I’m refraining from participating in the small gatherings that are...

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